sandy morris als obituary

Pallbearers will be Terry Oswalt, Terry Grammer, Jim Barns, Bobby Cannon, Jeff Oswalt, Tracy Tierce, Scott Collins and Ed Long.Honorary pallbearers are Hospice of West Alabama, employees of Lewis and Faye Manderson Cancer Treatment Center, friends and family of the Samantha and Brownville communities and Englewood Baptist Church family, and co-workers of ST Bunn. Biogens Commitment to Build Trust and Diversity in Clinical Trials [VIDEO], Dominantly Inherited Alzheimers Disease BrochureExpanded Registry Flyer (English), Enfermedad de Alzheimer de herencia dominanteExpanded Registry Flyer (Spanish). Click on the resources listed below to view the full versions of LCIs materials. Mark Randall Bradford. The best poems for funerals, memorial services., and cards. Sandy would say that her greatest accomplishments were her three beautiful children. From starting at the bottom of the ranks on a riverboat to running a successful business for 30+ years, Sandy is the epitome of the American Dream and a role model for us all. Her goal is to create hope for the future. Burial will follow in Piney Woods Cemetery with Sunset Funeral Home, a Dignity Memorial Provider, directing. He received his BA in anthropology from Colorado College and MS in journalism from Boston University. She was born in Richland County, July 13, 1947 and was the daughter of the late Dorothy H. Baker. He found joy in hunting, fishing, riding Jeeps, riding motorcycles, and playing with his grandbabies. She teamed up with fierce activists and worked to get the FDA to finalize an ALS guidance document for better clinical trial design and Expanded Access Programs as they were basically nonexistent at the time. Cremation arrangements are entrusted to Horizon Funeral Home. After having worked in law for many years she earned her paralegal from the University of Southern Colorado. The diseasecauses individuals to lose control of the muscles needed to move, speak, eat and breathe. At age fifteen, Sandy became independent and had to quickly learn the value of hard work and dedication. The next big issue Sandy decided to tackle was funding. Sandy Morris does a lot and her efforts have reverberated throughout the ALS world. If you disable this cookie, we will not be able to save your preferences. She will be remembered dearly and be sorely missed. ALS is a progressive nervous system disease that affects the nerve cells in your brain and spinal cord. It is knowing He will"". Let others know about your loved one's death. They also worked with over 30 clinical trial sponsors to make sure that they understood these new criteria and that the ALS community would be paying attention to whether they adhered to them. In addition to his outstanding work ethic, he added the more important values of love, compassion, and dedication to his roles of husband, father, grandfather (Bop), and most importantly Christian. Sandy would say that her greatest accomplishments were her three beautiful children. See Photos. What I decided in that hospital room, when I was up against absolutely zero choices, was that I would leave this disease in a better place than I found it, she says, that the next 51-year-old mother of three would not be up against this hopelessness., One of Sandys first big advocacy efforts was to join the call to encourage the FDA to issue updated guidelines for designing trials for ALS treatments that would better address the needs of people with ALS who were enrolling as participants. ), she would greatly prefer that those who loved her would spread awareness about ALS wherever they can. Her dogs and her were reciprocally devoted to each other. Sandy lives near Lake Truckee, CA with her husband of 32 years and their three amazing children ages 24, 22 and 20. So, ACT for ALS says, here is door number two. Box 1052 She is also survived by her father, Ed Seffern (Auburn, CA), her mother, Marlene Seffern (Walnut Creek, CA), her brother, Brent Seffern, and sister-in-law, Tracy, and her adored nieces, Abby and Emma. The family will have a gathering for friends at the funeral home on Saturday, May 7, 2022 after the service from 5:00 PM until 7:00 PM. ALS has lacked a voice in the past. Her fondest school memories and favorite stories to tell were of the Bivins School in Masterson, Texas and Dumas High School in Dumas, Texas. In January of 2018, Sandy's conviction was validated when she received her confirmed ALS diagnosis. The new law calls for the establishment of a grant program to help drug sponsors conduct expanded access programs (EAP) for investigational ALS treatments. I am on a mission to ensure that protocol is created in my lifetime for a group of people who deserve it. I am brave enough to participate in clinical trials and take experimental drugs/placebos to move this ALS needle along for faster drug development. We are using cookies to give you the best experience on our website. He was a devoted Christian and lived out what he believed. But there are those of us who were diagnosed late, and those of us who would have given away everything we owned to be in a trial, but we didnt make it. Right now, the law states that any medications taken for this purpose must be self-administered they cannot receive any help in taking the MAID drugs, which are usually taken orally. People with ALS (pALS) are amongst the fiercest you have ever seen. We all have to die one day. So many of us continue to maintain our positivity and hopefulness in a crazy tunnel of demise. See Photos. Its time to conquer ALS. You have funeral questions, we have answers. She is survived by daughter Cory, granddaughter Tara and Darrin Lakely, great-grandson Hayden Lakely; Sister Cheri Spears, brother David and Jody Morris; nieces Heather and Darren Cowley and child, Libby and Pat Schaper and children, Brianna & Bridget Spears and children, Ana and Ralph Avalos and children, and nephew Isaac Morris and children. We are the Truest Most Beautiful Love Story. Inspired by the lack of options and her own experience as a clinical trial participant, Sandy also dedicated herself to fighting for expanded access to investigational therapies for people with ALS during this time. But more research remains to be done to finda cure. In 2021, NurOwn was made available to a limited number of previous trial participants, including Sandy, through an expanded access program. I didnt cry, she remembers about receiving her diagnosis. Sandy was an accomplished artist and enjoyed painting antique cars and old gas stations. Here Are Four Ways to Spot Greenwashing, The White House Is Considering Broad Actions to ExpandTenant Protections, The School Board Queen Endorsed by Florida Governor Ron DeSantis, The School Board Queen: How a Florida Mom Is Shaking Up US Education, Ryan Salame Invested Big In ASmall Town, Now Its Tangled Up In FTXs Fallout(Podcast), Fight to Regulate Crypto atCrossroads as Ripple Ruling Looms. Sandy "Santos" Morris . She fought to make sure the patient voice was heard in the creation of these guidelines advocating for, as she puts it, trials that were designed for people, not zebrafish.. This is an issue for people with diseases that cause paralysis such as ALS, as they must decide between either choosing to commit to MAID before they are fully paralyzed and possibly before they are truly ready or sacrificing it as an option entirely. I pray God will surround y'all with His comfort and guidance today, weeks and months ahead. Sunset Funeral Home and Sunset Memorial Park, Do Not Sell or Share My Personal Information. Sandy was a force, whether it was going to battle with the FDA or planning her treasured childrens birthday parties, she always had a big vision, the energy to see it through to completion, and a detailed spreadsheet to go with it. At first, she says they were met with skepticism by many. Sandy showed her love easily and abundantly; her love is inspiring. Carol my love and sadness is with u ! See Photos. Dear Morris family, please accept my prayers and condolences over the death of your loved one,Sandy. To this end, Sandy has served as the leader the I AM ALS Clinical Trials Team for much of the past four years. Sandy was born October 21 st, 1951, to parents Bob and Vera Morris in Amarillo, Texas. There will be times u will scream and cry . Her grandparents were William Bartow Bart Austin and Ruby Austin and Audie and Spurgeon Morris. Taking care of her children, her granddaughter, and her parents in their last years were her priorities. Their love, dedication,and amazing Faith!! All Rights Reserved. Just cherish the memories and continue to make new ones so you can leave a legacy just as you have of Sandy. Buy some gear. After her ALS diagnosis, Sandy realized that her disease had been largely ignored for the past 150 years and jumped into ALS Advocacy with her goal of leaving this disease in a better place than she found it.. I am committed to holding leaders accountable to stand with us and fight to conquer ALS. Ralph Jenkins. Their focus is on encouraging the National Institutes of Health to adopt strategies for ALS research that have benefited other once poorly understood diseases such as HIV/AIDS. You can still show your support by sending flowers directly to the family, or plant a tree in memory of Sandra (Sandy) Morris Sosebee. Despite delays related to the Covid-19 pandemic that derailed the ACTs initial momentum, it soon became a rare bipartisan issue in Washington, with Republican Senator Lisa Murkowski and Representative Jeff Fortenberry joining Democratic Senator Chris Coons and Representative Mike Quigley to sponsor the bill. They decided they wanted to explore stem cell treatments. Sandy was lucky enough to partner with Brian Wallach in the summer of 2018 when they created and she led all four I Am ALS community teams for years until she was breathing with BiPap support but stayed active with the teams until her death. The prescious time you spent together will be a comfort and a guide for the rest of your life. Send flowers or a gift to a service or family's home. Today, Sandy is still fighting for better conditions of people with ALS as fiercely as when she began. I too, lost my husband to cancer 30 months ago and I do understand the pain of losing your best other half. Sandy and her family lobbied hard to get two laws successfully passed into legislation ALS Disability Insurance Access Act of 2019 and Act for ALS in 2021. Sandy was a force, whether it was going to battle with the FDA or planning her treasured childrens birthday parties, she always had a big vision, the energy to see it through to completion, and a detailed spreadsheet to go with it. July 2, 1966 - August 28, 2022 Sandy was born on July 2nd, 1966 in Neenah, WI, moved to California at six months old and lived there for the rest of her life. Make a difference in the lives of people living with ALS. Published by Tuscaloosa News from Nov. 8 to Nov. 9, 2017. She was widowed in 1970. She was thrilled to contribute to the novel MGH Platform Trial with her heroes, Dr Cudkowiz and Dr Paganoni. I know you as a family and the faith you have will help you through this time. When I do cry, its because I realize this disease has not been a priority the way that it should be, because of its brutality, and because its 100% fatal. Sincerely,May. Sandy was a wonderful man and will be greatly missed. Just like everybody else that has ever been diagnosed with ALS, you ignore it for a long time, she remembers. . She was on dozens of Patient Advisory Councils outside of IAA and worked with over 40 ALS drug sponsors to improve trials and offer wider access to investigational therapies. Keith was an avid fisherman, Pratt and Whitney employee for 42 years. The ALS Therapy Development Institute is a registered 501(c)3 nonprofit. Sandy is survived by her stepchildren; Mary (Brad) True, William (Cathy) Morris, her children; David Farris, Carla Farris, and Dennis (Vivi) Farris; her four grandchildren; Kelly (Jon) Hill, Debra (Aaron) Cline, Jared (Rachel) Morris, Brandon True; and six great grandchildren: Sophie, Parker, Chase, Brayden, Aden, and Lexi, and her sister, Judith Sturgess of Independence, Mo. Share your thoughts and memories of Sandy, Share your thoughts and memories with family and friends of Sandy. For Sandy, the bills passage was one of the proudest moments of her time in advocacy. They took such good care of Sandy and so many of her friends in the ALS community. Want to get stories like this straight to your inbox? There will be no service as there was a 2021 celebration of life party with so many of her beloveds. See Photos. And this would be true even if she wasnt living with ALS but the fact that she was diagnosed with the disease in 2018 at the age of 51 makes her tireless work to advocate for people living with ALS all the more impressive. Sandra Lee (Hodson, Farris) Morris passed away on December 7, 2021 at Jackson Creek Memory Care facility in Independence, Mo. Sandy was born on July 2nd, 1966 in Neenah, WI, moved to California at six months old and lived there for the rest of her life. For some people, the best send-off is one that they would have loved to attendthemselves: a big party. He said that reading those books was the most reading he had done in years. 2023 Compassionate Care ALS. This site is provided as a service of SCI Shared Resources, LLC. View obituary. She grew up in Concord, CA, and went to college in Sacramento, earning her MBA. She was preceded in death by her parents, her first husband John, and her second husband William, who passed away in February of this year. I worked with Rattler as many called him, for several years and it didn't take long to call him a good friend. I do not want you to focus solely on making me more comfortable while I die. Sandy shared her willingness toparticipate in future clinical trials and encourages others to educate themselves until ALS treatments and cures are found. I am committed to holding leaders accountable to stand with us and fight to conquer ALS. Sandy was born on Saturday,. Sandy and her family made several trips to Washington, DC, meeting with members of Congress to discuss the urgent need to fund expanded access programs (EAP) that could increase access to therapies for people with ALS. If youre in charge of handling the affairs for a recently deceased loved one, this guide offers a helpful checklist. No words can stop the sorrow and pain for your loss. He could always find humor in any situation and never lost that sense of humor. It was my privilege & honor being your mom. Obituary. Soon, she found she was tripping when she walked. By the time she finally decided to go to the University of California, San Francisco to pursue a diagnosis, she was convinced that she was experiencing the early stages of ALS. CANDLE HAS BEEN LIT CANDLES HAVE BEEN LIT, We are reviewing your submission. She was a 1967 graduate of DuPont High School and a self-employed medical transcripter. He fought a year long battle with cancer. !..he was a very good man! Although no one wants this devastating disease, Sandy fell in love with the amazing ALS community, and dedicated most of her waking hours to working with them, particularly with the I Am ALS organization. CHAPIN - Sandra Hill Morris of Chapin South Carolina lost her battle with ALS February 17, 2016. Dunbar Funeral Home - Dutch Fork Chapel. Sandy was an avid bird watcher, gardener, and loved to dance. I did not cry when I realized they were not kidding, there is no significant treatment and absolutely no cure. Carol, I am so sorry for your loss. DespiteALS beinga fatal disease, Sandy remainshopeful, We just need a happy ending and we dont have one yet.Her advice for other ALS patients and their loved ones is to remain as positive as possible while learning to live with their disease, something she acknowledges is not an easy thing to do. ""Faith is not believing God can. Theres a nursery rhyme adapted from a Shel Silverstein poem that Sandy Morris used to sing at Girl Scout camp in California. ALS is aprogressive nervous systemdisease that affects the nerve cells in your brain and spinal cord. See Photos. Of her many gifts, Sandy reminded us to celebrate our connections by acknowledging victories and milestones with you, the big ones and the little ones; it didnt matter, Sandy was on your side and cheering for you. Serving Truckee, Tahoe City, Kings Beach and Incline Village. Make no mistake, I will die trying. You will be missed my friend !! She also worked to help create the Morris ALS/MND principles, a set of guidelines that calls on policy, research, and healthcare leaders to make sure that people with ALS have a seat at the table when decisions are made about research, treatments, and funding for the disease. Sandy Morris, 69 of Dalhart, formerly of Boise City, passed away on Wednesday, October 20, 2021. Sandy and her family lobbied hard to get two laws successfully passed into legislation ALS Disability Insurance Access Act of 2019 and Act for ALS in 2021. Pallbearers will be Terry Oswalt, Terry Grammer, Jim Barns, Bobby Cannon, Jeff Oswalt, Tracy Tierce, Scott Collins and Ed Long. Graveside Memorial Services for Mrs. Sosebee will be held on Saturday, May 7, 2022 at Rockmart Memorial Gardens at 4:00 PM. November 22, 2022 (58 years old) View obituary. She was a member of Rogersville First United Methodist Church where she also sang in the choir. Sandy spent her childhood on many ranches and grew up attending schools in Texas, New Mexico, and Oklahoma. Sheencourages others to get involvednoting,Thats the only way were going to move forward.. David Love, Jr. 1989 - 2022. Don't leave this world without JESUS! Because when I looked up, 'why won't my flip-flop flop?' Mrs. Kinsanthel Beverly Wilson Manzy Mrs. Kinsanthel Beverly Wilson Manzy departed this life on Wed. May 18, 2022. Sandy enjoyed cooking, antique cars, flea markets, collecting Coca Cola memorabilia, and Hallmark ornaments. Sandy showed her love easily and abundantly; her love is inspiring. She was born in Rockmart on July 25, 1942 in Rockmart, GA. She was the daughter of Hoyt Morris and Doris Austin Morris. ""Faith is not believing God can. NORTHPORT - Sandy W. Morris, age 56, of Northport, Ala., died November 7, 2017, at his residence. If you absolutely feel compelled to donate, please donate to the MGH Platform Trials, who are doing outstanding urgent work in advancing ALS research. Much love and prayers. All I can say is turn to God, family and friends for your comfort because it is there waiting for you. As we mourn the loss of a fierce and selfless advocate for the ALS community, take some time to read the Morris ALS/MND Principles: https://t.co/NZbTtC5CmW https://t.co/WmWL86adP1 Les Turner ALS Foundation (@LesTurnerALS) August 30, 2022 This feeling of getting swallowed, in slow motion, is what Morris says its like to have amyotrophic lateral sclerosis, also known as Lou Gehrigs disease. Clever and witty, Sandy loved to keep laughing. Rock your style. We that are saved will get to be with him again " Praise the Lord" !! She saw and heard people; when she asked you whats your favorite song? she listened and added it to her Favorites playlist. This is a very hard road to travel for you . Carol you know you are a very special person to so many. I'm glad to know I'll see him again and it will be forever then. Sandy faced ALS with bravery, inner strength and grace. In the 21st century, it's not just urns and gravestones anymore. Mrs. Sandra Faye Morris Sosebee "Sandy", beloved sister, sister-in-law, aunt, great aunt and friend passed away at her home in Rockmart, GA, on March 23, 2022. His entire family looked up to him and adored him. Eventually, however, the momentum behind what would become the Accelerating Access to Critical Therapies for ALS Act (ACT for ALS) grew and grew thanks to Sandy and many other dedicated activists. When her doctors told her she had ALS, she replied "I know." Getting Involved in Clinical Trials. NORTHPORT - Sandy W. Morris, age 56, of Northport, Ala., died November 7, 2017, at his residence. As her disease progressed, she took delight in sipping whiskey, watching the sunset over the Sierra Valley with her devoted family by her side and singing along to her favorite song (or maybe yours.). She saw and heard people; when she asked you whats your favorite song? she listened and added it to her Favorites playlist. Sandydiscussed ways she wantstocontinue tomake a differenceincluding attending FDA meetings to share her experienceand influence more efficient, humane clinical trial design. Expand the Memories and Condolences form. She was a member of the Beta Club, the chorus, the basketball team and was named Star Student of her class. View Tribute Book Events Alvis Miller & Son Funeral Home & Crematory is in charge of the arrangements for Mrs. Sandra Faye Morris Sosebee Sandy. Most of all she loved her family and friends. She was married to Edward Bryan Sosebee Ed in September of 1962. Sandy loved the outdoors; active in crossfit, cross country skiing, running, horses, and hiking. Then she was falling. That nothing is out of their reach.. I want them to know I gave this everything I had when I make that call to my beloved death doctor. Sign up for service and obituary updates. She worked there for 12 years until she retired, then moved back to Rockmart to be near family. Visitation will be Thursday, November 9, 2017, from 6 to 8 p.m., at the church. ALS has lacked a voice in the past. I want my children to see a fighter, she says. My condolences to the familyi met mr morris about 11 years ago doing what he love driving his dump truck i was an employee of st bunn.rest on rattler! Obituary. She was born September 26, 1943 in. Sandy Morris. To plant trees in memory, please visit the. It was a tough time, but her family rallied around her, jerry-rigging their home to be more accessible, and working around the clock to provide her with care. If you have been lucky enough to cross paths with Sandy, you know she welcomed you in with gracious ease, a warm smile, a bright laugh and most likely with a deliciously mixed drink. She teamed up with fierce activists and worked to get the FDA to finalize an ALS guidance document for better clinical trial design and Expanded Access Programs as they were basically nonexistent at the time. I was late learning about Sandy as I was at Childrens with Maxwell. Born in High Point on June 14, 1940, to proud parents Ethel and Ben Herman, he was quickly welcomed into the . In lieu of flowers donations can be made to help with funeral expenses at the First State Bank of Boise City, or the family requests donations be made to the Northwest Domestic Crisis Services Inc. 406 S Main Street Guymon, Oklahoma 73942. Cynthia Holcomb. She grew up in Concord, CA, and went to college in Sacramento, earning her MBA. Her friendship was a true gift. Ashlee Vance explores innovations in new tech, software, engineering, and science in places outside of Silicon Valley. Lets run toward a cure. Sandy lived with integrity, respect and positivity. God Bless all of YOU ! The Dignity Memorial brand name is used to identify a network of licensed funeral, cremation and cemetery providers that include affiliates of Service Corporation International, 1929 Allen Parkway, Houston, Texas. It may take up to 1 hour for your comment to appear on the website. Graduating high school in 1969 she attended the Amarillo School of Cosmetology, later taking secretarial classes from Seward Community College to learn shorthand and dictation. Its about being eaten by a boa constrictor, beginning with the toes, and Morris can still recite the lyrics by heart: Oh, fiddle, its up to my middle / Oh, heck, its up to my neck / Oh, dread, its upmmmmmmmmmmffffffffff. Collaborating with other members of I AM ALS, including Nadia Sethi, who has since joined the ALS Therapy Development Institute (ALS TDI) as our Director of Community Outreach and Engagement, she created a universal rating system for ALS Clinical Trials. Sandy Morris. NORTHPORT Sandy W. Morris, age 56, of Northport, Ala., died November 7, 2017, at his residence. Now we have the money there for [clinical trial sponsors] to study those of us who cant get into the trials, Sandy says. Sandy started his journey into adulthood earlier than most. Before coming to ALS TDI he was a Multimedia Producer at The Conversation US, a national news and analysis website written by academic researchers and edited by journalists. Honor a loved one by planting trees in their memory. Giving to charity is a meaningful way to honor someone who has died. The disease causes individuals to lose control of the muscles needed to move, speak, eat and breathe. Strictly Necessary Cookie should be enabled at all times so that we can save your preferences for cookie settings. Sandy spoke candidly about theeffectsof ALS, No one wants their body to trap them. A mother of 3, shewasdetermined not to give up hope. Cremation arrangements are entrusted to Horizon Funeral Home. Their days were lived and their testimony will forever be instilled in my heart, Thank you Lord for such loyal and faithful Godly Children that can walk the walk and talk the talk. Sandy does not want any flowers sent (please, no! marketing resume summary; choke point ap human geography definition; custom polyester hoodie; tap changing transformers are used for; stanford mba course catalog ), she would greatly prefer that those who loved her would spread awareness about ALS wherever they can. People named Sandy Morris. His entire family looked up to him and adored him. Burial will follow in Piney Woods Cemetery with Sunset Funeral Home, a Dignity Memorial Provider, directing. On January 6, 2018, at the age of 51, Sandy Morris was diagnosed with Amyotrophic Lateral Sclerosis, also known as ALS. Founded by ALS patient Brian Wallach and his wife, Sandra Abrevaya, I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policy-makers and offering vital resources for people impacted by ALS. She made those around her better. Juanita McGowen Kohel (Nita). Of her many gifts, Sandy reminded us to celebrate our connections by acknowledging victories and milestones with you, the big ones and the little ones; it didnt matter, Sandy was on your side and cheering for you. Call if u need me . Sandy we love you Taco Brother and will miss you here on earth but to know that you are celebrating in Heaven with Jesus, our Lord and Savior is so beautiful and refreshing. She worked for Hewlett-Packard in Roseville, CA, for 28 years with her last job as a Global Business Analyst. 'M glad to know i gave this everything i had when i looked up, 'why wo n't flip-flop... A gift to a limited number of previous trial participants, including sandy, best. 21St century, it 's not just urns and gravestones anymore ALS world to participate in clinical trials and experimental! Only way were going to move, speak, eat and breathe about your one! Send-Off is one that they would have loved to dance MGH Platform trial with her husband of 32 years their! Weeks and months ahead, through an expanded access program plant trees in their last years were her beautiful. And was named Star Student of her children, her granddaughter, and Oklahoma eat and breathe, Dr and! Outdoors ; active in crossfit, cross country skiing, running, horses, and.... Grandparents were William Bartow Bart Austin and Ruby Austin and Audie and Morris. Sandy as i was late learning sandy morris als obituary sandy as i was late about... 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Lost that sense of humor of 1962 am ALS clinical trials and experimental... Surround y'all with his grandbabies Share my Personal Information does a lot and efforts! Expanded access program your life it is there waiting for you am on mission... Please visit the up, 'why wo n't my flip-flop flop? can leave a legacy just you... Of previous trial participants, including sandy, the basketball Team and was the daughter of the Beta Club the. Her priorities and it will be greatly missed 2018, sandy & quot ; Morris to focus solely making! Want any flowers sent ( please, no one wants their body to trap them University... Friends of sandy but more research remains to be near family family, please visit the can save preferences... To plant trees in memory, please visit the life party with so many of her.. N'T my flip-flop flop?, 22 and 20, from 6 to 8 p.m., at residence. To honor someone who has died ensure that protocol is created in my lifetime for a recently deceased one! 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Of your loved one, this guide offers a helpful checklist in Amarillo, Texas, Dr Cudkowiz Dr...

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